Sunday, June 23, 2013

More Progress, Praise God!

* Emma is off the CPAP breathing machine and only on the nasal cannula. This is just a small tube in her nose and right now she is at 3 liters and breathing 21% oxygen, same percentage that we all breathe. Once they move it down to 2 liters they will probably remove it! She hasn't had any problems breathing so far so it is only a matter of time until she is off the breathing machines completely!

* She is doing great at maintaining her body temperature so we started swaddling her today so hopefully soon she can be transferred out of her "glass box" to an open top bed!

* We started feeding Emma my breast milk through her feeding tube a few days ago but her stomach was having trouble digesting and there was a lot of yellow/green bile left in her stomach after feeding. The doctor ordered an upper gastrointestinal radiological exam to see if her stomach was rotating and flowing correctly. This was done yesterday at noon, and all of the results came back normal! Hopefully the answer to this is just that her digestive system hasn't fully matured. We started her back on feedings this morning, a smaller dosage, and she did great! There was barely any of the bile left in her stomach after a few hours. Once her body can start tolerating more and more feedings is when we will really be able to tell if her fluid starts re-accumulating, meaning the cause of her hydrops could be lymphatic, which is not good. There are ways of treating this, but of course we are continuing to pray that this is not the answer.

Justin and I are continuously overwhelmed at God's grace through this journey. We are in debt to Him, yet He is still pouring His blessings over us! We are praying that all of the glory of Emma's progress goes only to God, the ultimate healer! If you are reading this, know that we are praying for you too, and we are so thankful for you. Emma has no idea how big her fan club is!

Now that Emma is doing so great, we would like to share a few pictures with you of our little angel!

Meet Emma Grace!
 
 I can't stop staring at her sweet little face!

This was after bath time on Saturday night!
She loved when the nurse was massaging her head with shampoo!

 
During bath time, squeaky clean little girl!
 
 Daddy is already wrapped around her little finger :)

3 comments:

  1. Oh my heart! She's a beauty! Praising the Lord she is doing so well! Continuing to pray for her and for you guys also! Let us know what we can do for you guys! we're here!!

    ReplyDelete
  2. Well, my makeup is gone for the day....so many tears of joy! Thank you for posting the pictures of beautiful Emma Grace and her precious mom & dad! Bless the Lord O my soul and all that is within me, bless His Holy Name. Bless the Lord, O my soul and forget not all His benefits. Prayers continue! Love, Jan G

    ReplyDelete
  3. Praise God! She is so beautiful. I am happy she is progressing. I will continue to pray.
    Love, Tina Rankin

    ReplyDelete